Message to Our Legislators on Protecting Persons with Disabilities

                 Right now, families of children with special needs are under attack in multiple ways. Will you protect the most vulnerable people in our society? Or are you determined to withdraw the support that is necessary for persons with disabilities to survive and for their families to keep their heads above water?

                My wife and I have experienced this firsthand. Our oldest child was born in 1980 with Tuberous Sclerosis. The most terrifying aspect of the disease is brain tumors. As a baby he suffered multiple grand mal seizures per day. Our physicians, who were wonderful, predicted that he would not live, and that if he did he would never walk or talk. We both persevered. My wife quit medical school for a year, and I, a licensed lawyer, took less demanding work so I could stay with him.

                Multiple studies show a direct connection between family income and the presence of a child with disabilities. This is the result of a number of interrelated factors:

·         The average household income of a family with a disabled child is only two-thirds the household income of a family with healthy children;

·         Parents of a child with disabilities spend more money on their disabled children, and spend more time and effort on those children, than on their healthy children;

·         Parents of a child with disabilities are 30% more likely to get divorced.

Our oldest is 44 years old now, and we are 75. He is developmentally disabled, but he volunteers in programs to help other people who are more disabled than himself. We didn’t divorce, we had three more amazing children, and we live a comfortable life, but we absolutely earned far less over our careers than if we had not dedicated ourselves to his well-being.

For decades my wife and I conducted adaptive recreation programming in our community, serving dozens of children and adults with developmental disabilities. We grew to know those families intimately. As we age many of those families are experiencing unbearable levels of financial and emotional stress.

What is the response of the present administration to this crisis? 

• Cut Medicaid, which not only pays for housing, daily care, and medical care for persons with disabilities, but which also pays for medical insurance for so many of our families living in poverty;
• Cut special education, which depends entirely on the federal Department of Education for funding that the states do not provide and for regulations that the states would now be free to ignore;
• Cut NIH grants and research, which seek treatment or a cure for so many of the conditions that cause disability.
• Cut Social Security, including programs such as SSI, SSDI, and DAC that directly serve persons with disabilities.

Are you going to stand with persons with disabilities and their families? Or will you vote to abandon us?

“A civilization is measured by how it cares for its helpless members.” As one of our leaders, that is how you, too, will be measured.

Fascism

The essence of fascism is narcissism. It is the opposite of caring and compassion towards others. Every manifestation of fascism involves the elevation of self and the exercise of selfishness. The most obvious aspect of fascism is

NATIONALISM

Not patriotism - not love of country and the willingness to sacrifice for the common good of the nation. Instead the starting point of fascism is nationalism - the belief that one's own country is better than all the others, and because it is superior therefore it is more deserving than other nations. America First! This justifies

AGGRESSIVE WAR

Fascists see nothing wrong with starting wars to steal the land and resources of other countries. Sometimes they offer weak excuses for invading other countries. "Iraq is building weapons of mass destruction." "Vietnam attacked us in the Gulf of Tonkin." But among themselves fascists need no excuse. They simply want to enrich themselves. Give us Greenland! Emotionally, their greed is accompanied by 

FEAR AND HATRED

Fascists' belief in their own superiority masks their essential cowardice - their fear of and hatred for "the other." Racism - sexism - homophobia - hatred of transgender persons - hatred of jews or muslims - hatred of immigrants - all are symptomatic of fascism. Fascists love to lie about and scapegoat helpless segments of our society. Jews will not replace us! Do you hate muslims? Have you been taught that there is something wrong with gays and lesbians and transgender persons? Do you despise "wokeness" because it supports the essential equality of all persons? Do you think it's funny when Donald Trump mocks a reporter with a congenital disorder? Do you believe the blatant lie that undocumented residents commit more crimes than native-born citizens? If so, you may wish to revisit your beliefs because you are on the road to fascism. As fascists ramp up the fear of others, they promote 

FORCE AND VIOLENCE

Fascists use force not only outwardly against other countries. They also use force against anyone they perceive as an enemy. They torture prisoners of war. They engage in political violence. When an opponent wins an election they do not celebrate democracy and support the will of the people. No, they riot, and they do not attend the inauguration of their opponent. January 6, 2021! All of these aspects of fascism are fed by a sense of 

HYPER-MASCULINITY

People who think that men are natural leaders and who refuse to vote for a woman. People who relish dominance displays as if they were proof of being better or smarter. People who debate by yelling and insulting others instead of weighing the facts and considering the consequences of their policies. Men who have numerous children by different women but who do nothing to raise those children! People who insist on strict gender roles, who think that "gay" is an insult, who oppose same-sex marriage and no-fault divorce, who want control over women's bodies, by law, by force, or by barring women from the professions. These people too are prone to fascism as a way of achieving dominance.

Fascism is on the march in America. What shall we do? How do we stop it? The answer is simple to say but hard to do. The answer is love. We counter hate with love. We act lovingly, but also openly, fiercely and steadfastly. We must speak, we must write, we must march, we must organize. We must stand up for equality and non-violence and democracy.